Thursday, October 21, 2004

10/21/04

I'm sorry that I didn't clarify what exactly Cass' syndrome is. It's called 4q Deletion Syndrome. His specific one is 4q34.2. We're not sure exactly what problems he'll have or what will happen. We're trying to deal with it day by day and be thankful we are together. Thank you all for your added support. It is very comforting to know others are reaching out to us.

1 Comments:

Blogger Elise Burrell said...

hey Kris- just spoke to dad the other day and this is actually my first time on this web page- it's such a great thing so everyone can be updated!! I love you so much, Kris- I know it must be hard to live day to day never knowing what'll happen with baby Cass- I feel a bit displaced because I'm not there, but my thoughts and prayers are with you- you are an example to me of trusting the Lord- I have such a hard time with that sometimes with my petty questions and worries about being an old maid rocker chick on the road with no family of her own- but not because I haven't tried, if you know what I mean. Puts things in perspective, is all I'm saying. I love you~elise.

October 22, 2004 at 4:30 PM  

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