Tuesday, July 25, 2006
Day of Trach Removal!!!
Sorry I left all of you in suspense of what happened. Cass had his trach removed (de-cant) on Monday July 17th. What a week it has been, finally feeling like a normal family. He was such a stinker going into the bronch, was really showing off for the nurses.
After the bronch they removed the trach and admitted him into the hospital over night just to watch. The doctors and nurses wanted to keep him hooked-up to the monitors, but Cass had other plans. He ran around the floor all night and was yelling and jabbering the whole time. He wanted to play and not cooperate for the nurses.
Tuesday afternoon he came home and he was happy to not have the trach anymore. We celebrated all day and are still on a high from the joy. Cass moved out of his room downstairs and moved in with his big brother James where they share bunkbeds now. They both think it is really cool and are thrilled to be together. James has waited for this for a long time. We're all adjusting to the new found freedom from the trach and I have to say the only thing we miss are the nurses that cared for Cass. They have become a part of our family.
Monday, July 17, 2006
Happy 2nd Birthday!!
Just wanted to let everyone know Cass is doing really well. This spring he had throat surgery to make a little more room in his airway. He has started walking, now running and we're just trying to keep up with him. Cass has discovered food!! He loves to eat which is a trait carried over from my side of the family. He is growing like a weed and we are loving every moment of it. He has not been fed by the G-Tube for over a month and last week at weight check he had gained. Yippee!! Maybe by the end of the summer he'll get his feeding tube out. Today he is going in to have a bronchoscopy and as long as everything looks good he'll have the trach removed. We are so excited.
Friday was Cass' 2nd birthday! We decided to celebrate it two weeks from now since grandma and papa are out of town, but we'll celebrate having his trach removed too. So if you think of it, celebrate with us, have your own little party and think of Cass while you're doing it. Thanks for all your support and prayers on his behalf and ours. We'll keep you posted on today. Thanks!